Bexhill family join drug treatment funding protest
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A Bexhill couple whose son has a life-threatening condition took part in a protest outside Parliament in a bid to get a '˜vital' drug treatment funded.
Lottie Norton and Ed Usher’s two-year-old Freddie has tuberous sclerosis complex (TSC), a rare genetic disease which allows tumours to develop in multiple organs, including the brain. In Freddie’s case, these cause epilepsy, and autistic behaviours.
The Tuberous Sclerosis Association (TSA) organised the protest to fight for the drug treatment Everolimus to be funded for children with inoperable brain tumours.
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